Elizabeth had another good day ( for the most part). I woke up this morning to her nurse and occupational therapy putting her in her seat we bought her and when I went over to look, she was smilling and laughing. Then she started crying and to our surpise threw up!! Which surprised us since when she got her g-tube(feeding tube) they also did a nissen fundoplication, which is supposed to make it so she cant reflux or vomit. So not sure what happened, but thankfully it didnt seem like she aspirated, her saturations dropped but came back up once she calmed down. So the rest of the day she spent being extremly playful, happy and smiling which was great to see her getting back to her normal demanor. When Elizabeth got her gtube last month we were scheduled for a followup this month to learn how to change her gtube out, since we will need to change it every 3 months and to know how to put it back in if she accidently pulls it out at home. SO guess what I got to do today- yes change the gtube, which isnt nearly as bad as changing the trach but still not fun. THEN the case manger comes by and guess what else I got to do today - yep I had to change the trach!! Let me mention here that Matt went home yesterday to work for a few days and check on the house and stuff. So not only did I do these two things but I did them without him (If he had been here, Im not sure I woulda done it!) After the trach change Elizabeth got a little fussy and decided to throw up again, still not sure why or how that happened all over herself and her blankets/bed. So she got a bath and her bed is now decorated for Halloween :) She has improved greatly over the past two days with being able to sit up without as much support, hopefully she will be back to the point she was before surgery soon.
Wednesday, September 29, 2010
Wednesday, September 29, 2010 10:00 PM, CDT
Elizabeth had another good day ( for the most part). I woke up this morning to her nurse and occupational therapy putting her in her seat we bought her and when I went over to look, she was smilling and laughing. Then she started crying and to our surpise threw up!! Which surprised us since when she got her g-tube(feeding tube) they also did a nissen fundoplication, which is supposed to make it so she cant reflux or vomit. So not sure what happened, but thankfully it didnt seem like she aspirated, her saturations dropped but came back up once she calmed down. So the rest of the day she spent being extremly playful, happy and smiling which was great to see her getting back to her normal demanor. When Elizabeth got her gtube last month we were scheduled for a followup this month to learn how to change her gtube out, since we will need to change it every 3 months and to know how to put it back in if she accidently pulls it out at home. SO guess what I got to do today- yes change the gtube, which isnt nearly as bad as changing the trach but still not fun. THEN the case manger comes by and guess what else I got to do today - yep I had to change the trach!! Let me mention here that Matt went home yesterday to work for a few days and check on the house and stuff. So not only did I do these two things but I did them without him (If he had been here, Im not sure I woulda done it!) After the trach change Elizabeth got a little fussy and decided to throw up again, still not sure why or how that happened all over herself and her blankets/bed. So she got a bath and her bed is now decorated for Halloween :) She has improved greatly over the past two days with being able to sit up without as much support, hopefully she will be back to the point she was before surgery soon.
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