Friday, September 10, 2010

Friday, September 10, 2010 2:29 PM, CDT

9-10-10 After a rough night, Elizabeth is being paralyzed and given pain meds to help her rest Elizabeth is doing a little better, still sedated/paralyzed but her heart rate and oxygen saturation has been good. They were able to get the PICC line in her arm so we wont have to worry with anymore IV sticks or blood draws, all of that can now be done via the PICC line.  They did another Echo on her heart today and we are waiting to talk to Cardiology about the results. A custom trach has been ordered for her since they think part of her discomfort may be caused by the length of her tube, her new one will be here Monday in time for her first trach change.  We have no idea how long they will keep her sedated/paralyzed it all depends on her breathing/heart rate. But at this point we are fine with them giving her as long as she needs to rest and heal from the surgery.
Me, Matt and Aunt Carie participated in Trach Care class today. We learned how to clean the trach site and how to suction the "gunk" from the trach and airway. We practiced on a baby doll and will eventually start doing this with Elizabeth. We have a few more classes on different topics to help make sure we are comfortable and capable of caring for her when she is able to go home. We are grateful that so many of our family members are also going to take these classes so that we will have some help with caring for Elizabeth.

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