Elizabeth's CT scan showed that there is a vessel putting pressure on her airway which can be causing some of the floppiness. There are a few options:
1~ A surgery called Aortopexy, (which we were told is too risky for Elizabeth, and we totally agree with that) so really thats not an option at all.
2~ Tracheostomy
3~ We give it time and see if Elizabeth outgrows it which the Drs are pretty sure she will eventually, the downfall of this is that she will be at risk of having these spells where her oxygen requirement goes way up and her saturations drop which could cause more issues with her pulmonary hyperetension.
So as you can see we are struggling to make the best and most informed choice for Elizabeth all of the options have risks. We have learned alot about Tracheostomy over the past few days, and I visited with a mother and son yesterday who has had a trach/ventilator since he was 2. The ENT Dr is supposed to come by sometime this weekend and explain things more regarding the vessels and how much they are compressing the airway. And we will meet again with the Doctors on Tuesday to try and decide what the best choice for Elizabeth will be.
She has not been feeling well the past 2 days, her stomach has been bothering her ALOT! Which has caused her heart rate and oxygen requirement to be higher, our concerns have been addressed and we are hoping she will be feeling better soon.
No comments:
Post a Comment