|Some of the Team E members after our Zumba Class|
|Kyle & Will at Grand Opening|
And of course, I have to add in an update on our miracle girl. Elizabeth is doing good with everything. She has started eating more and more by mouth, talking ALOT more and in general being a funny, spunky 3 year old with attitude :) Last week she had an orthopedic and cardiology appointments. Ortho didn't exactly have the best news. Her hips are still not going into socket the way the need too. So the Dr thinks sometime within the next 2 years she will need to have surgery to help place her hips in socket where they need to be. For now we will continue to work on weight bearing/standing/walking. We are hoping to get her a walker ordered within the next month or so to help give her more stability. Cardiology didn't have alot to offer, Elizabeth fought like crazy this time during the echo. So they were not able to get any good pictures of her heart. After discussing everything with the Dr, we plan to try and transition cardiology to Texas. That way if there are any major issues they are handled at the hospital that knows her best. And since her FLNA mutation is so rare and TCH seems to be leading with diagnosing it, it makes sense to try and be where the most knowledge is. So we are hoping the remainder of September is good for Elizabeth. October will be a busy month for us. We travel back to Houston for her 2 1/2 year lung check up and then we will be heading to Disney. Elizabeth is being granted a wish trip through Make A Wish, we are excited for her to have a trip that doesn't involve Drs or hospitals. She has been saying "mouse" alot lately, so I think she is looking forward to it. Thank You for your continued prayers and encouragement!
|Could you still smile like this after ALL she has been through??|
|LOVES Oreo Cookies|
|Bananas are a new Favorite|