Thursday, September 30, 2010 12:00 PM, CDT

The day again started with Elizabeth throwing up, which she did twice for some unknown reason. Nutrition stopped by and we discussed it possibly being her new formula, but the change has helped her tummy feel better without all the gas. They had decided to test her for C-diff which can affect her stomach, nothing major but may be part of the problem. They do not think thats what the issue is but want to rule it out. Nothing else has grown from her blood/urine/trach/viral cultures from the other day so we will know tomorrow what the plan is as far as stopping or continuing her anitibiotics. She did have another slight fever of 100.6 today, but it went down pretty fast without needing any tylenol or anything which makes me think there is just something bothering her belly plus the fact that she is teething! The pulmonologist came by and discussed that since Elizabeth has been able to breath on her own above what the ventilator is doing that they want to try an wean that part of the vent down, so that she is totally breathing on her own. The ventilator will just provide pressure and oxygen so she will be on CPAP through the ventilator. They are weaning the rate down by 2 starting at the setting of 20 every 8 hours to see how she does with it. Its just one less support the ventilator will have to provide for her at home. Shes down to 16 now, and doing well.  The case manager also came by and we discussed nursing care for when we get home. The plan for now is to have 24 hour private duty nursing in our home for 8 weeks and then we will reevaluate and decide if we want to continue with 24 hr care or if we want to have less. It is going to be hard to adjust to having a stranger in our home all the time.