Some days it doesn't feel like its been 5 years, but at the same time the routine of daily medications, checking oxygen levels, making food for the feeding pump, ordering supplies, making dr appts, dealing with insurance is just "another day" here. I worried we would be overwhelmed with the care that Elizabeth needed but you just learn to adapt and it becomes part of our daily life.
Elizabeth has had a pretty good year and has enjoyed being a full time student :) I can't believe her first year of Kindergarten is almost over! I am SO thankful for the teachers and principal at her school, they made this scary transition so much easier. Elizabeth has really taken to one of her teachers, Ms. Tracie, and I am so thankful for her and how much she cares for our little bug. It helps me to know that she has people who care about her so much, and understand our concerns.
When we first started this journey, we were told its like a roller coaster ride, and that has definitely been the most descriptive way to to explain everything about the past 5 years. As we head for another loop in this ride, I remind myself of all that Elizabeth has endured over the past 5 years. It breaks my heart that I can't fix this or take it away. But I also know that she is so strong, and has fought so hard in the past there is no doubt in my mind that she will continue to do so through this and I have faith that she will wake up asking for her ipad!
Thank you for your continued prayers and support, most of you who will read this listen to me vent and stress all the time and I know I don't say it often enough, but I appreciate your support, love and understanding. And most of all I appreciate your love and prayers for Elizabeth!