Wednesday, September 15, 2010

Wednesday, September 15, 2010 9:16 PM, CDT

Still being sedated, and doing ok. She was awake some today and got a little excited about playing with her favorite toy, her giraffe that she LOVES to chew on, a little excited meaning we had to take it away from her. She popped her ventilator off about 5 times this morning just by moving around and fell asleep holding onto the tube once (it was sad and cute all at the same time). The "plan" for now is to just wait and see, let her body continue to recover and adjust to having the trach and try to lower the sedation as she can tolerate it and keep her oxygen saturation up and continue to try and wean off the ventilator, but if she gets to a point where she is awake and stable we can always go home on a ventilator. Our Mom's stayed with Elizabeth for a while today so that Matt and I could get out again today, we got Elizabeth her first Halloween costume shes going to be a lady bug :)  Hopefully we will be HOME by then, if not she will get to wear it at the hospital. Forgot to add they weighed Elizabeth today and she's up to 13.6 lbs (which is great considering she was stuck at 11 for a while before her Gtube surgery last month). She is still behind on growth but hopefully once she gets settled from all this trach stuff she will be able to grow and get stronger.

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