Wednesday, September 22, 2010 10:22 PM, CDT

E is officially off the Versed! She no long has her PICC line hooked up to anything (but it has to stay in just in case she needs IV meds/fluids for some reason). She is getting her ativan/methadone via her gtube now. She did seem to be having some withdrawl symptoms today so they adjusted her doses and hopefully we will see some improvement with her mood and agitation level with that. She has been fighting sleep ALOT, which I would too after being through so much but she just gets more irritable and makes her heart rate go up and her oxygen saturation go down so we are trying to keep her calm and relaxed as much as possible. Thankfully the case manager came by and asked if we wanted a break from trach change for the day, of course I was happy about that! I assume she will try to talk me into doing it tomorrow, but we will see how that goes. Elizabeth is still struggling with the ventilator, they had to increase her pressure and oxgen that she recieves from it, so far she seems to really like the ventilator so we may end up having to have one at home. We are realllly hoping she will be able to come off of it maybe once all the medications are outta her system and she is able to adjust.