Monday, September 20, 2010

Monday, September 20, 2010 8:21 PM, CDT

9-19-10 ~ Elizabeth smiles when you sing ABCs to her and touch her on the nose  :) They started giving Elizabeth Ativan and Methadone to ensure she doesnt have withdrawls from the stronger meds, hopefully she will be totally off of Versed and Dilaudid within 48 hours. The doctor came by today and talked to us about ordering a home ventilator for her, just in case she ends up needing it. He said it could take a week or so to get one here and he wants to have it ready if she needs it, since she will have to be switched from the hospital vent to home vent and observed on it to make sure she does ok. We are still hopeful that she wont even need a ventilator for home, but we will see. She had physical therapy today, and we worked on trying to sit up again, she is still a bit "drugged" and very weak, so she cant hold herself up yet but seems to be getting better each time.
 Elizabeth's new thing is sticking her finger up her nose :) Since she had a cannula on it for so long, its like a new toy to her. She likes for her nose to be touched and keeps putting her finger in it. She still still into chewing everything, including parts of the ventilator tubing, and her IV line.
    We did trach care and suctioning/bagging again, which I am ok with. But we also did another trach change, which Matt ended up doing and I helped. I still had a hard time looking at it, but maybe next time.

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