Elizabeth had a roller coaster day! She was weaned off the ventilator to CPAP earlir in the morning and then put back on the ventilator because she was working so hard to breath and couldnt keep her oxygen saturation level up. They continued giving morphine and tylenol for pain and started giving benadryl since the morphine makes her nose itch so much. She was still a bit fussy and couldnt seem to calm down so they also gave her some versad to help her relax and rest. They also stuck a scope down the trach to measure and ensure that it is the correct length and in the right place. She had a few xrays on her lungs to make sure they were not filling with fluid or collapsing. I am in the sleep room tonight and Matt is staying with Elizabeth in PICU. He just told me she has a slight fever 100.4, so not sure what the cause of that is, but they will continue to watch it. :(
I am trying not to get discouraged but we were hoping this would help her so much and it hasnt seemed to do much for her yet, other than make things worse! Hopefully after a little more recovery time we will be able to see the difference.
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