Saturday, September 18, 2010

Saturday, September 18, 2010 6:44 PM, CDT

Elizabeth is still on Versed, Dilaudid and Phenabarbitol. They have weaned alot of the meds down to smaller doses but thats still alot for a little baby to be on! Once she is able to come off of these meds she will be switched to ativan and methadone to keep her from having withdrawls from the stronger drugs, for those of you where were around for her last major hospital stay in March they had to do the same thing then. No major news today other than continuing to decrease the amount of meds. She has been awake a lot more and playing, trying to chew on everything. As I have mentioned before we are not able to hear her cry or make noises due to the trach. Last night she started squeaking, there is a leak (an opening around the trach in her airway that allows air to pass through), so she can make a little bit of noise. She has "cried" more today than she has in the past, which again we cant hear her but we can definately see her crying and see the tears, its heartbreaking everytime. We held her up for a little while and got to help with suctioning and cleaning her trach today. Thankfully the trach change only happens twice a week, I still feel horrible about that. Her Dr came in today and said he was surprised I had problems with it, since I am a police officer and see things alot worse, Its totally different seeing something like that with my own child than it is dealing with injuries and stuff at work!
 Hoping for an uneventful weekend and continued improvement, looking forward to getting out of ICU soon! There are more limitations and rules regarding sleeping arrangements, food, visitors and having to use showers in a different area of the hospital so it makes things a little more diffucult for "living" here.

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