This time last year Elizabeth was fighting for her life. November 16 2010, Elizabeth turned blue and was unable to recover, that day set into motion our offical journey to transplant. November has been a busy month, filled with thankfulness and rememberance. The events that happened in November last year, will always be a constant reminder to me to be thankful for each and every day - even the bad ones -, a reminder to be thankful for Elizabeth's strength to fight, thankful for those who fought with us to save her and to be thankful for those who have supported us along the way.
During November we achieved a milestone, this was the first time since Elizabeth's birth that we spent more than 3 whole months at home without being hospitalized. Seems like a small thing to celebrate, but in the life of a chronically/critically ill child, These "long stretches" at home are reasons for celebration and something to be thankful for!
Elizabeth is doing really well as far as making progress with her therapies and adjusting to our "normal" life,which involves her staying at home alot now that its flu/rsv season. As I have posted in the past few months Elizabeth continued to have problems with vomiting. And after seeking help from the GI Dr and not really getting answers that I thought were benefical. I decided to try something on my own. I had researched blederized diets, and how some families of kids with G-tube/nissen fudoplications had issues with vomiting/retching/ and just overall GI issues. I chose to completely stop giving Elizabeth formula and switch her to a blenderized diet. It basically consists of lactose free milk, baby rice cereal, different baby foods -meats, veggies, fruit, olive oil and honey. Since we started this new feeding her vomiting has almost completley resoloved and her other GI issues have gotten better as well. I am actually pretty proud that we made this choice to switch. She acts like she feels so much better, and seems very happy with this transition. Hopefully it will continue!