Wednesday, April 7, 2010 12:16 AM, CDT

An attempt to wean off nitric again today, and again Elizabeth just wasnt having it! They weaned her from 10 to 5 this morning and she lasted about 6 hours before her levels just dropped and she had to be put back up to 10 on the machine. So a new plan was devised, she will start a new medication called Bosentan tomorrow to be used with the Sildenafil to hopefully help with the pulmonary hypertension. At this point we still dont know how much of her problem is related to the lung disease or how much of it is the pulmonary hypertension. This new medicine will take days to get into her system before we will be able to try and wean off nitric again.     They have also decided to add more fortifier to her milk to increase the caloric intake in hopes of gaining more weight. A genetic couselor was also called in to look at the different variables in her condition just to see if there could be something the doctors are missing.