Thursday, April 8, 2010 4:20 PM, CDT

Elizabeth had a pretty rough morning, they got her down to 5 on the nitric oxide during the night and this morning she started running a fever and they took alot of blood for the genetic testing so she had to be turned up on her oxygen and the nitric was moved back up to 10. Since she had a fever they took alot of blood and urine cultures to check for any type of infections she may be getting and also went ahead and started her on antibiotics just in case. The result from those tests wont be back for a few days. Since they took quite a bit of blood for the genetic test they are now planning to give her a blood transfusion (her 2nd one since being in PICU). We were also told that the plan to start a 2nd medicine for the hypertension wont be started, it would be best to wait and see if she can wean on her own or possibly increase the Sildenafil instead, so we will see. Other than that no new news today, she is still opening her eyes and moving around some but they are trying to keep her sedated and pain free so she sleeps alot. The pulmonologist is waiting on a response from the specialist in Cinncinati about the lung disease to see if any more treatment needs to happen or if it will just take time for her lungs to regrow the damaged tissue.