Poor Elizabeth had a bad day! She hasnt been able eating enough with the bottle and the doctors were concerned that she wasnt getting enough nutrition so they decided she needed to have the feeding tube put back in. It took her nurses 4 tries, and then went to radiology and a dr took forever to get it in place. She was not very happy and neither was I!!!
They want her to get fed through the tube but we will continue to try and feed her with the bottle as well that way we are sure she is getting enough calories and nutrition to help her grow and keep her lungs growing/recovering. Physical Therapy stopped by today and showed me some things to work on with her, to hopefully get her back on track developmentally, with holding her head up and learning to roll over. Still waiting on what the next step is, home or Cinncinati first. Hopefully we will know something soon.
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