Elizabeth is doing great today! Shes smiling and seems pretty happy. We will be getting moved to a regular room outside of PICU at some point today, defiantely a step towards going home. Still waiting on the speech pathology people to come by to evaluate her and then schedule the swallow study before we try to feed her a bottle. Hoping that will happen today or tomorrow since not much gets accomplished on the weekend around here :) Shes stilling being weaned off the pain medications, and now off of all the monitors except for the oxygen saturation one, which makes it alot easier to hold her. Her body movements are still very slow which could be from all of the medicines she has been on or her development could be a little slowed due to low muscle tone, so they will be monitoring that for a while even after we leave the hospital.
Matt and I have both returned to work, trying to get some type of schedule down. We are so grateful for all the help that everyone has given us and for those who have helped take care of Elizabeth while we work. Hoping to get her home really soon! Will post our new location later today.
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