Elizabeth had her swallow study earlier, she did aspirate on just thin liquid but when they added something to make it thicker she did well. So she can start having bottles again but the milk has to be thickened with cereal so that she doesnt aspirate and we have to give her breaks to make sure she is remembering to breath and swallow. So every 10 sucks we have to let her take a short break and then she cant eat for longer than 20 to 30 mins at a time, just to make sure she doesnt aspirate anything. She fell asleep as soon as the test was done, so she hasn't gotten to take a real bottle yet but I know she is ready too as soo as she wakes up!!! They will leave the feeding tube in her nose for a little while until they are sure is will do well with the bottle, but hopefully they will be able to take that out soon. And she is down on her oxygen again to .8.
They are ready to move us out to a regular room but the hospital is full right now so no rooms available for us, so we are in one of the SMALL rooms inside PICU for right now, but hopefully they will get a room for us later tonight or in the morning.
Still waiting for her pulmonologist to stop by so we can disucss the Cinncinati trip and see what else needs to happen here before she can be discharged.
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