Sunday, April 25, 2010

Sunday, April 25, 2010 11:35 PM, EDT

Just got home from visiting Elizabeth, and WOW does that child have a temper :)  Could it be the combination of two red headed parents???
    We think that she has been so fussy lately because she is realizing that she hasnt had a bottle in quite a while, even though she has the feeding tube she still doesnt really ever feel "full". They have scheduled her for a swallow study sometime tomorrow to see if she can take a bottle again, so hopefully that will go well and it will help comfort her to be able to eat "normal" again. We think that we will start discussing the Cincinnati trip tomorrow as well with the doctors and start getting a plan together for travel/appointments and a timeline for when we will be going. Other than that nothing new, she is doing really well down to 1.5 liter oxygen and keeping her oxygen saturation at 100%. Hoping to get some new pictures to post tomorrow.

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