We met with Dr Lisa Young today a pulmonologist with the Rare Lung Disease program. She expressed concern about Elizabeth and her condition. After reviewing the results from the Echo yesterday Elizabeth's pulmonary hypertension has gotten worse. Which means she has more stress on her heart. Dr Young also said that almost all cases of this specific lung disease are no longer seen in children over 6 months old so Elizabeth is close to the point where the lung disease should not be affecting her. She showed us pictures of Elizabeth's lungs compared to those of a healthy child and explained to us how her lungs are very immature. Apparently her lungs are still under-developed and that is one of the problems that keeping her on oxygen along with the pulmonary hypertension. Her lungs need to grow, but with her growth issues and the sterorids she is on her growth is slowed. SO she wanted to admit her to the hospital. After discussing things and trying to decide what would be best for Elizabeth and for us, she was able to make arrangements for us to go to Vanderbilt tomorrow and be admitted so we are only 2 hrs from home instead of 6. She also discussed other concerns regarding her failure to gain weight, and her developmental delays and wants the Dr at Vanderbilt to look into those issues as well. She told us none of these issues are emergency problems but things that need to be looked at sooner than later and felt that admitting us would be the best way to get her looked at and cared for sooner than later. We are unsure how long we will be at the hospital but hopeful that Elizabeth will get some much needed treatment and not struggle daily to breath. We appreciate everyones continued support and hope that we will have better news to share soon!
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