Friday, July 23, 2010

Friday, July 23, 2010 12:10 AM, EDT

We made it to Vanderbilt and after meeting with the pulmonologist Elizabeth was admitted as planned. On our way up Dr Young from Cinncinati called to check on us and reassure us that Vanderbilt was a good choice and she was confident in the care here and that she had been in contact throughout the day with the Drs here to make sure they were ready for Elizabeth. So far everyone has been great here, the Doctors seem to have a plan of action so over the next few days/weeks. The main things that are of concern are her growth/feeding issues which prevents her lungs from growing and getting better, treatment for her pulmonary hypertension which will worsen if her lungs dont grow,trying to wean her off or change her steroid treatment and her developmental delay. She will be having a cardic cath and MRI on her brain done at some point which will require she be on the ventilator again during sedation. So of course the concern for her coming off the ventilator is there. Her actual treatment will all depend on what happens with all of the tests. We dont have a specific schedule yet but I will update as we find out. The only thing that happened tonight was getting blood drawn for some tests to check her liver/kidneys and stuff to see how the steriods have affected her. Of course she didnt like that very much and they had to stick her twice to get enough blood.

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