What a long day! We got to the hospital around 830 this morning and the Dr started and IV for fluids. Thankfully he was awesome and only had to stick her once!! She is usually very diffucult to get an IV in. She did well with her CT scan and echo, they did have to put her on a ventilator for CT since it was a high resolution scan. They control her breathing so they can get better pictures of how lungs and an idea of her lung capacity. They also kept her sedated for the echo so they could get some good pictures without her moving around. She was very fussy when she woke up from sedation and had trouble keeping her oxygen saturation up at first, she was a little "blueish" when we got back to see her but we were finally able to calm her and down and she got back to her base line on oxygen and we were able to leave the hospital.
Tomorrow we meet with the Pulmonologist here that specializes in rare lung disease, I am excited and nervous to hear what she has to say. She should hopefully go over the CT scan images with us so we have a better idea of what condition Elizabeth's lungs are in.
We are hoping to head home after the appt tomorrow, and we are already scheduled to come back in October to meet with Cardiology to discuss her pulmonary hypertension.
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