:)

Things have continued to be busy around here. Elizabeth had a few days of some serious vomiting ALL day long. It has gotten some better with adjustments to her feeding schedule, but we are still trying to figure out if its reflux related or something else with her digestive system. Thankfully her doctors feel comfortable letting us work though this as an outpatient and just replacing her lost fluid with water and pedialyte via her gtube and sippy cup.

As for progress with her breathing and "extra equipment" she is doing AMAZING. She has been totally off of the ventilator for the past two nights. She either has a cap or the passy muir valve on her trach 24 hours a day. So we will be meeting soon with her ENT Dr to discuss when we can hopefully get rid of the trach all together. And of course getting rid of the trach (hopefully by the end of the month) also means we will no longer need in home nursing care :) which is pretty exciting to me! The nurses we have are really good, but I just want us to be as normal as possible, which means not having extra people or equipment in our home.  Her 3 month post transplant bronch will most likely be at the beginning of August due to the Dr's schedule and once that is done, if all looks good she will have her broviac removed and we can start planning our trip HOME!