Progress

Elizabeth with her 1st sippy cup!

Elizabeth's sodium level is finally within an acceptable range, and her other electrolytes are starting to get back to normal from being so sick/dehydrated. For OT we started working on getting her to drink from a sippy cup, she seems to like it alot so far :) I think that may because she is so dehydrated that she will take anything she can get. So we will how that goes once she is totally back to normal. She has not had anything to eat since Saturday, just IV fluids. We are hoping to start her on pedialyte tomorrow and then Wednesday back on her formula.
   Since she is almost back to baseline with everything they have scheduled her for Wednesday to have the tubes put in her ears and to do the scope of her airway. They plan to remove the granulation tissue from her trachea and hope that it will help with getting her closer to decannulation (removing the trach).

So precious :)

  And for the most amazing progress of the day: Around 1130 today I noticed Elizabeth's oxygen saturation was staying at 100, even on the lowest settings so I turned her oxygen off. We have been trying this everyday and she usually only lasts about 10 minutes before we have to turn it back on. But today she did AMAZING!! I was impressed at 30 minutes, but by 3 hours I was pretty sure we may be making huge progress today. She has been totally off of it all day except during nap times. This is a huge milestone for her. Considering she has required oxygen since 5 minutes after being born. Of course she still has her trach and the passy muir valve but no oxygen attached. So needless to say today was a BIG day! Hoping for a week of continued progress!!