Elizabeth was able to wean off the nitric oxide around 1130 this morning. She had an echo done when she was at 1ppm of nitric and then again when she weaned off. The cardiologist came by and told us that she could not see a difference on the echos based on being on and then off nitric, so she does not feel that a cardiac cath is necessary. Her dose of Sildenafil has been increased today and will continue to increase over the next 2 days in hopes of helping keep the pulmonary hypertension controlled. SO, our question is what caused this decline and what are the chances it will happen again? Since it doesnt appear to be her heart that has caused it next thing is for the Pulmonologist to decide if there is more that they think needs to be done on the lung side. We are grateful that her heart doesnt seem to be worse, but now worried that we still dont have an answer.
She is still in PICU until she can be weaned down and off of the high flow oxygen but they plan to start weaning that today, so we may be in a regular room within the next day or two. Once cardiology and pulmonology get together and discuss the findings from today we will maybe have more news.
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