Monday, August 30, 2010 6:07 PM, CDT

Elizabeth had her bronchoscopy this morning, she did well during the procedure and after during recovery. The pulmonary Drs came and talked to and explained that Elizabeth has a floppy airway, know as tracheomalacia. Which "could" be a contributing factor in her rapid declines with her oxygen saturations. We know that her lungs are underdeveloped but by having a airway that is floppy and doesnt always allow the oxygen down to her lungs could cause her lungs/heart to work hard and need more oxygen, causing her to have the pulmonary hypertension crisises. The Ear, Nose, Throat Drs just came by and want to do a CT scan of the airway to make sure there are no vessels or anything pressing on her airway causing this or if her airway is just floppy. The upside to this "new issue" is that most of the time kids can just grow out of it, but since she already needs so much support there is  a chance she will need a tracheostomy to ensure her airway stays open. For now we are not sure what route we will need to go. We are having a Care Conference tomorrow at 2, which is when we will meet with all of her doctors here, pulmonary, cardiology, neurology, nutrition, gentics, and anyone else I forgot :)  This way we are sure that everyone knows her current status and everyone is on the same page as far as treatment plans and issues. We "may" get to go home this week depending how the CT goes and they also plan to do another Echo and Upper GI to make sure there are no changes with those things before we leave.