Elizabeth had a somewhat better day. Her mood was alot better, she was happy and playing alot today. She is still on high flow oxygen and nitric but they were able to wean it down some. At this point there are a few things that need to be done in order to make Elizabeth more stable and to have a better chance at letting her lungs grow.
In order to get Elizabeth what we believe to be the best possible care, Matt and I have requested to have her transferred to Cinncinati Children's Hospital. Since her conditon has gotten worse, we feel that being at the hospital with the doctor who specializes in her lung disease and has seen children with very similar issues would be the most beneficial thing for Elizabeth. She also needs to be seen by Cardiology to assess her pulmonary hypertension again and most likely have a cardiac cath done on her heart. There are some other things that may need to be done and I will write about those as the decisions are made.
The plan for now is to keep her stable and keep weaning nitric and high flow oxygen amounts. The staff and doctors here are planning to work on getting things in order for us to transfer tomorrow. Best case is that we will be heading up there early next week.
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