No major changes. The infection she had seems to have gotten under control, the cultures showed again MRSA (she has had this show up numerous times since September). Her oxygen is still at 45% and the went down a little on one of the vent settings. They also went down by 1 on her Fentanyl drip since over the past 2 days she has not required any extra sedation!! That in itself is awesome, going from days of needing 20+ extra doses to none is amazing. So they will wean down very slowly on the sedation to point that she is comfortable and still stable. She is stil having alot of trouble with her feedings, everytime they try to increase them her belly gets huge and they have to go back down on the amount. She has been moving around alot but still not opening her eyes. We are hoping that as the sedation meds are decreased she will be more awake and open her eyes.
I cant believe that January is almost over! This time last on the 29th I was having my gallbladder removed, and Matt was being trained on oxygen and the "leaving NICU" plans. Crazy how much has happened in a year. Matt and I have learned so much about being parents and caring for our precious little figher. We are so lucky to be have been chosen as her parents, it has been and continues to be a difficult journey but we are lucky to be here.
Just wanted to ask for thoughts and prayers for all the kids back home and here that are sick. I have been reading on Facebook SO many kids that are sick having breathing problems, FLU, RSV and all kinds of other things. Maybe thats normal and I just never really paid attention to that kinda stuff until now. But I know how stressful it is and hope for a quick recovery for all of them!! Make sure you are washing/sanitizing everything and keep those germs from spreading :)
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