Things got pretty scary and then a little better! Throughout the day Elizabeth continued to have "bad" numbers. Her oxgyen index was staying 25-27 and then she got to 34. Elizabeth seems to be getting really used to alot of the sedation medications, and her heart rate keet going up which was making her upset and causing her oxygen saturation to drop. Then the Dr decided that she needed to have her trach changed because she was again losing alot of air around it. Plus it would give her the custom length trach that she needs. They were worried that taking her off the ventilator and changing her trach would cause her to have major issues, so they had alot of nurses, doctors, ECMO team and the crash cart by our room. SO as we have been suggesting and questioning they changed her sedation up a little and added a different medication, they gave it to her before they did the trach and she did AWESOME!!! Her saturation was in the upper 90s throughout the whole procedure and she has remained good since. Her saturation has been at 100 since then and not floating around, and her heart rate is staying down. Her most recent oxygen index was 14!!! So that is the best news all day! Granted we have only had "success" for a few hours but staying off ECMO is a huge accomplishment right now since she was so close. We are hoping she will have a good night and continue to well. We also hope that the new antibiotic, the new trach, and the new sedation med will help put her on the right track and they can start to wean down her ventilator settings!!
We are very grateful for our ENT Dr who was not on call, but took time from his off day to come in and change Elizabeth's trach out. We trust him alot and are very thankful for him!
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