Elizabeth's day started out decent, they weaned her vent/oxygen down and she was still having good numbers on her blood gases. Then about an hour ago her oxygen saturation started trending down and her heart rate up. And her blood gas was not as good as it as been. They gave more meds and turned her vent/oxygen back up. She was given some meds to help open her vasuclar system up and help with blood/oxygen flow. She is also going to get another blood transfusioin, her blood was a little low and they want to be sure she has enough to ensure it it flowing and providing oxygen to all of her organs. So its another wait and see night.
The most frustrating part is not knowing, I mean we know she is sick but we dont know if any of the stuff they are doing is actually helping her. She is so up and down and cant level out for more than a few hours.
I just want her to be better!!! I miss seeing her smile and being awake and playing.
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