Still inpatient

Its Baby Jail!!

So we are still at the hospital. After discussing the infection and the fact that it wasnt clearing quickly, and that even if it "gets better" now there is a 25% chance it would get infected again. Matt and I INSISTED that it be removed. Why chance going home to turn around and come back here when she gets another infection. Maybe I'm crazy, but that doesn't sound like a good idea to me.  Our only reason for keeping the broviac was to make blood draw and infusions easier. But convenience is not worth risking her life to save this stupid line. That was on Monday. The "plan" was to check her IGG level and if needed give her the IVIG infusion through the line, then get the line removed, and go home on antibiotics via her feeding tube. Well, someone lost her blood that was supposed to be sent to check the IGG level ~ it was drawn on Saturday. So the new plan is that her blood was redrawn today, and sent to Alabama to be tested. It should be back tomorrow, and then we will either give IVIG if needed or not depending on the level. She will go down to surgery and have the line removed and we will go home. IF for some reason the bloodwork isnt back, we  have already told them to remove the line and we will figure out the IVIG stuff later. This is ridiculous for us to be stuck in a hospital due to someone elses negligence. The longer she has this line in, the harder it is to treat the infection. And the longer we are in the hosptial her chances of getting sick just from being here increases.  Needless to say, Matt and I are VERY frustrated with our experience here. But we are hopeful that things go well tomorrow and we get to go home.

Elizabeth seems to be feeling much better. She is playful and smiling again. I think shes just tired of being here like we are. She busted my lip and bit me yesterday, so I  think shes punishing me for keeping her here :(

Elizabeth has two appointments at Vanderbilt next week, an eye appt, synagsis vaccination appt and an appt with her pulmonologist here at home the week after then her trip to Texas has been rescheduled for the end of the month. BUSY, BUSY month, but again we are grateful for all of it!