Friday, October 28, 2011

Celebrating and Remebering - 6 months with Angel Lungs

    "There are only two ways to live your life. One is as though nothing is a miracle. The other is as though everything is a miracle."

The above quote reminded me tonight that each moment, we have with Elizabeth is truly a miracle. October 22 was Elizabeth's 6 month post transplant date. We spent the day at a baby shower celebrating the upcoming arrival of my best friend's baby boy, who just so happens to be due on Elizabeth's 2nd Birthday. Some days it seems like yesterday that we were sitting a hospital praying for her gift of life, and other days it seems like its so far in the past. But EVERYDAY I remember how hard she fought to stay with us and everyday I am grateful for this gift and the family that helped make our miracles possible.

Elizabeth continues to do well at home and is making lots of progress with physical and occupational therapy. Our biggest concern right now is that she is still vomiting frequently. We have a referral to see a GI doctor next week to try and get this figured out. She is always smiling and seems so happy almost all of the time. We do struggle with a sleep schedule. She wants to stay awake ALOT. Sometimes I think she just wants to make up for lost time. :) Plus me working midnight shift and Matt working dayshift tends to confuse her some I think.

We recently had some pictures taken and I wanted to share them with those who may not have seen them on Facebook. A great big thank you to Breanna Hodges Photograhy. She did an amazing job, and was wonderful to work with!



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