We arrived home in Tennessee on Friday August 19th. I wanted to update sooner, but life has been busy around here! Trying to get her medical/feeding supplies and all the pharmacy stuff switched over. On top of moving all the stuff we accumulated in 8 months of living in Texas into our house that was already full of our stuff, we have been de-cluttering and trying to organize. Thankfully we have been able to throw away tons of old ventilator and trach supplies that were taking over Elizabeth's room so that has been a big help. Elizabeth had an appointment with her pediatrician here and will see her pulmonologist next week. We also have appointments set of for hematology and cardiology within the month, just to get everyone here in Tennessee up to date on her status.
Elizabeth's big Suessical Welcome Home Party was yesterday. We had over 200 people show up plus 2 news stations here to cover her story. We had table set up from Tennessee Donor Services, the TN organ procurement center to help promote awareness as well. I hope everyone enjoyed themselves. I loved planning the party with all the themed foods and decorations. I know some people probably think we are cray for having her around that many people but I think we did well with still controlling the environment. There were many signs hung reminding people to sanitize their hands, 2 large bottles of sanitizer on the sign in table and small bottles on all the tables. Plus Matt and I kept Elizabeth close to us and tried to limit anyone else holding her. Its all part of trying to not live in the bubble but still keep her as safe/healthy as possible.
I am reminded daily of how blessed and lucky we are to have her with us. She has fought so hard to get to this point and continues to amaze me. I am thankful everyday for the family who saved Elizabeth's life. We think of our donor family everyday, especially the precious angel who is watching over Elizabeth.
Here are the links to the news stories from her party if anyone is interested in seeing them:
http://www.wdef.com/news/lung_transplant_baby_returns_to_middle_valley_home/08/2011
http://www.wrcbtv.com/story/15347923/hixson-toddler-returns-home-following-lung-transplant
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| Elizabeth Wren Jetton |
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| Elizabeth, Grammy and Paw (my parents) |
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| Elizabeth and "Aunt" Latisha (My Best Friend) |
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| ALWAYS the center of attention ;) |
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| We released balloons for Elizabeth's Donor Angel with a note attached |
What a beautiful post -- here is to hoping her Angels family know who you are and gets to read this post!
ReplyDeleteHow wonderful that baby Elizabeth is home. I am so happy for all of you. Looks like a wonderful party. It is so exciting, too, for those of us who have followed her story and prayed for her and your family all these months. God Bless All Of You!!!! Still continuing to pray! Saw the story on the news this week. Elizabeth is so beautiful! Releasing balloons to Elizabeth's angel is one of the sweetest sentiments.....how precious! Much love to all of you! Please give Elizabeth a kiss from Shirley.
ReplyDeleteShirley Hawkins
We are gr-parents of a baby girl who got her trach last Sept. the same week as Elizabeth. We found E's caringbridge site while searching for info regarding trachs. We couldn't stop following E's story and have prayed for this day to come and always remembering her gr-parents because we know how they have hurt along with you. So happy she's home and rid of the trach. We hope that will come for our baby soon. Best wishes. Jan Harris, Frankfort KY
ReplyDeleteCongrats Elizabeth! You look fantastic!!! So glad you are Home,Home (as Luke calls it).. what a huge accomplishment (and without the trach!).
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