Saturday, May 8, 2010 2:16 PM, EDT

Still doing good at home! She is now off of the morphine wean and has been doing good with it. Had two Dr appts yesterday, she has gained some weight shes up to 10lbs 2oz now.  Planning to start weaning her from the steriods over the next few weeks and hopefully she wont have any setbacks like last time but we will be watching her closely. We are still waiting on the Dr to get everything for Cinncinati approved through our insurance before we go up to visit. They adjusted her feedings through the tube, she only has to be on it 12 hrs a day now so we are trying to get to eat more on her own hopefully she will do well with it and be able to not need the tube.