What a week!!

 This picture was from Father's Day!! TOO sweet. There were days we worried we would never get to share these precious moments, and THIS is what its all about and why we fight so hard!!

As I mentioned last week in my caringbridge post, this past week was very busy with tests in hopes of getting out of the hospital soon. Well we had the tests, but wont be getting out soon. Elizabeth's bronchoscopy of her lungs looked great, so we are thankful for that. But it also showed some granulation tissue on the inside of her  trach site that may be occluding part of her airway, and will need to be looked at and possibly removed. She also had her hearing test, which showed she possibly has some hearing loss but she also seemed to have fluid behind her ear drums. So the  fluid will need to be drained and then her test repeated later. So "the plan" was to have the tissue looked at/removed and tubes placed in her ears Friday last week. BUT Elizabeth got really sick on Wednesday night and they did cultures and started her on antibiotics to rule out infection. I ended up getting sick on Thursday, and Matt got sick on Friday. So the upside is that it appears to be a stomach virus that the three of us all got. But it hit her the hardest because of her lowered immune system. Her sodium levels have pretty high and they are replacing lots of fluids since she is so dehydrated from throwing up/diarrhea. We are hoping her levels get back to normal within 2 days. They stopped feeding her today to help give her stomach a break and also stopped all the antibiotics since nothing has grown from the cultures and they are pretty sure since we all got sick its just viral. So hopefully this weekend will be uneventful and she can just rest and rehydrate :)  Once she is back to normal we will schedule her procedure and a swallow study. Hoping sooner than later!

This is Elizabeth yesterday, looking pitiful and sickly :( Poor Baby!!