Tuesday, July 13, 2010 12:44 AM, EDT

I havent updated in a while, things have been "good" with Elizabeth. She is maintaining her current oxygen level at about 1.5 liters of oxygen and gaining weight very slowly. She is still small and has some developmental delay. She has started physical therapy to help her catch up and seems to be happy most of the time. We are now preparing for our trip to Cinncinati Childrens Hospital. She will be put under anesthia for a high resoultion CT scan and and echo on her heart. And we will get to meet Dr. Lisa Young, a pulmonologist who specialized in Interstital Lung Diseases in children. We are hoping to learn more about Elizabeth's disease and hopefully what we can expect in the future.  We are so grateful for the continued support and concern that everyone has given us.